Lymphoedema is a chronic condition that can lead to pain, reduced mobility, and significant emotional and psychosocial burden. While standardised patient-reported outcome measures capture physical and psychological impacts, they may overlook important aspects of the lived experience. This service evaluation aimed to explore patient experiences of lymphoedema at first contact with the service by analysing open-text responses from LYMPROM© submitted to a single lymphoedema service, and to identify concerns not captured by fixed-response items. A retrospective thematic analysis was conducted on 229 anonymised open-text responses submitted via LYMPROM© for patients newly referred to the Swansea Bay University Health Board (SBUHB) lymphoedema service between November 2020 and December 2022. Data were analysed using Braun and Clarke’s six-phase framework, with coding and theme development undertaken collaboratively by three researchers to enhance rigour. Four overarching themes were identified: the burden of multiple comorbidities, disrupted sleep often linked to pain and discomfort, the emotional toll of lymphoedema, and behaviour changes related to social withdrawal and diminished confidence. Patient narratives revealed experiences not easily captured through structured assessment alone. The findings support the integration of narrative data to inform more holistic, person-centred care.